Last week I was in bed one evening exhausted with fatigue. There i was browsing my facebook page and noticed that Mary Boyle Bradley had a Radio show that evening interviewing with her brother Dr. Phil Boyle who’s a Fertility Specialist in The Galway Clinic here in Ireland.
I listened to the show with great interest. Dr. Boyle talked about how LDN was helping many women with hormonal problems like PCOS. He talked so much sense and science. Check out the show here on Mary’s Blog Talk Radiohttp://www.blogtalkradio.com/Mary-Boyle-Bradley/2009/07/21/The-Mary-Bradley-Show
I liked the fact that Dr. Boyle had evidence it was helping women in his clinic and that also he wasn’t marketing it as a wonder drug and took a balanced view that diet was important too. I lost faith in LDN four years ago when it made me terribly stiff. I also was getting it from a doctor outside of the country and really i needed to see someone face to face to get the dose right at the time. Diet has worked wonders for me for years. Counselling has been helpful. Supplements very helpful. And last January i joined a gym class through a program run by our MS Society called “Getting the Balance Right” and this too has been another positive healthy step for me. I believe there’s many ways to better health and I hope LDN will help this time round aswell as all the other things. I am not expecting miracles but i will be damn happy if it slows the progession like it has for many others i’ve talked to. Also it would be fantastic if it balanced my hormonal system a bit better. Dr. Boyle finds that people with low endorphins experience a list a symptoms nearly all of which i have. He says paients who beneift from LDN therapy have many of the following:
- premenstrual symptoms lasting for 4 or more days each cycle ( √ PMS gets pretty bad for me most cycles!)
- endometriosis or polycystic ovarian disease ( √ i have PCOS symptoms since i was 16)
- persistent brown menstrual bleeding ( i rarely get this but it has happened occasioanlly)
- persistent fatigue or sleep disturbances( √ sleep disturbance was more an issue for me a few years ago. The last five years it’s rare i have problems falling asleep and infact sleep deeper however fatigue is a symptom i deal with ongoing. It varies alot. I get different forms of fatigue mentally and physically, it’s the physical one from MS is most debilitating for me when at worst. Cognitive fatigue can be a big issue for me too. It’s like my brain shut downs.)
- low mood or excessive anxiety( √ I got through bouts of anxiety. They can come on for no apparant reason. Sometimes i think it’s an MS thing, other times it seems to coincide with PMS. I have gone through some rough cycles where anxiety has stayed for a period and developed into depressionI have tried a few SSRI’s but they they make fatigue worse and make me put on weight which makes my PCOS worse. Counselling as helped this side of things better and supplements once i keep taking them. There’s a herbal remedy called Avena Sativa I was recommended for anxiety and it definately helps. Also when I continually take my B complex it helps. )
- a personal or family history of autoimmune disease,MS, Rheumatoid Arthritis, autoimmune infertility.( I have MS. No other history of auto-immune i know of)
I was very very happy talking to Dr. Boyle. I felt that all my health problems were someway connected and I got a wave of hope that his help with LDN and diet may help me. It is the track i want to pursue as I had bad experience with CRAB’s injections in the past for MS and from my own research and talking to others and some doctors it just doesn’t sit comfortably with me to suppress my immune system.
I started LDN last Saturday night the 25th. So far all going fine. I started on 2mg and sticking to that for a month. Usually most people start on 3mg but because I had stiffness last time i was on LDN. Dr. Boyle advised that 2mg would be better dose to start.
Night 1I had a bit of disturbed sleep and a few vivid dreams. It was funny. I dreamt my partner brought home a gorgeous little puppy. I hate waking up from those nice dreams
Night 2 i didn’t notice the disturbed sleep as much but very vivid dreams again and i had a nitemare but didn’t remember
I was making funny noises in my sleep that woke everyone up except me
Since Night 3 I have noticed nothing. No disturbed sleep, no vivd dreams , no other side effects. I haven’t noticed any positive effects from it yet but because i am only on 2mg to start i will have to be patient. Dr. Boyle has warned me it could take some time and this is understandable when only on 2mg for a month and i won’t be on the 4.5 till month three.
In the meantime I am ordering two tests from a UK nutritional company for diet purposes. They are tests I’ve wanted to do for years and put off many times. I am getting an IGg food intolerence test and a candida one. Food intolerences are quite common with MS aswell as PCOS and because I have Irritable Bowel Syndrome spasms the last few years i think this is all gonna help. Since my daugther has been 6 months old I started getting spasms in my bowel. For months i thought it was coming from my womb and it was through that pain that I was actually diagnosed with PCOS! I used get pain in my ovaries at the time too so thought it was the cycsts causing all this pain.I suspect I have PCOS since I was 16 though when weight, acne and excess body and facial hair all started to become a problem.
My bowel spasms can be quite nasty. Luckily i don’t get constipation or diarrheoa which most do with IBS. My diet while it has lapsed since my daughter was born, it is still very healthy compared to the average person. We eat only wholegrain. No white bread, pasta, rice etc. Lots of veg and fruit. Very little processed food and try and avoid sugar as much as possible. Lots of lean meat, mainly white and fish. I stuck to the Best Bet Diet for MS for a few years prior to giving birth to my daughter and I wonder whether going back on dairy and gluten started my bowel spasms. Also there is another factor though. In times of stress and lack of sleep my spasms always start and once they start they are there a few days. They wake me at night and I explain them like labour contractions as they flare up getting stronger till they peak then gradually back down. It’s about a 20 minute process and quite painful at times. I compare them to mid stage labour. I had a natural birth with my daughter and I often laugh about my cramps since because i feel i could have given birth hundreds of times more since with the pain from those spasms.
I hope to get my candida and intolerence tests in post soon and do them at home and then wait for results. The last month I’ve been adjusting my diet a bit more. Getting rid of junk i eat at times but i’m not going to rid the gluten or dairy till after the intolerence test in case it affects test. Regardless of test results I will probably try eliminate gluten and dairy again anyway as had great success this way before and Ashton Embry’s Research on this area makes sense so it would probably be for the best.
There is a home candida test. It’s called a Spit test and i’ve done it at home at times before and it’s showed up candida. I’ve treated with grapefruit seed extract but I suspect i may have candida again so definately a good idea to get proper blood test for it. Dr. Boyle will help me treat it with medication if it shows up positive.
It’s been an eventful week. Lots of positives. My daughter is starting school in September and I’ve been trying to keep up some positives of this year and start some more the last few weeks. I’d like to get back to study or work part times when my daughter is in school. I have not worked since 2001 as my health and becoming a mum has got in the way. Now I feel I need some more to my life and it is beciming more possible. Parenting has been very challenging with health problems. I’ve been a Stay at home mum the last 4.5 years and looking back i don’t know how it did it. My health was never that bad i had to put my daughter into childccare but at the same time i struggled to do the job. I am stubborn ! I also didn’t want to miss out on all those milestones along the way.
I hope to keep updating regularly. I am really fatigued tonight. It was a busy day. I did 20 mins of resistance and cardio workout this morning. Then in afternoon we went on train to city for a meall and then had friends over tonight for tea. I usually manage quite alot in the day but i wither away come 6pm and end up on couch or bed for the night feeling brain dead and sore. I have terribly sore feet the last while. That reminds me that for my next post I’m going to describe all my health symptoms here. I want to keep track of them to see whether there are improvements or not.
Until tomorrow…